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  1. It takes some serious guts to write your story online! You’re clearly such a brave and strong person and it’s amazing that you’ve not let MRKH Syndrome define your life. Keep raising awareness lady, you should be proud of yourself 🙂

  2. Thank you so much for your story. I had no idea about MRKH Syndrome. I hope you will get a chance to meet more people who also have the syndrome and getting your story out there will definitely help. It is always helpful to have those who are going through the same thing as you emotionally. I wish you well and good luck.

  3. It’s brave of you to share your story. I really appreciate it.

  4. M_of_IVF baby says:

    I wanna thank you for sharing your story with us. I’m sorry to hear so many of lovely women suffer from MRKH! My case differs, and it was enough to apply for IVF to have our baby. However the close friend of mine is less lucky..She got to know about her ”special state” at 18. I mean, it was when the diagnosis was officially confirmed by her doc. I can hardly find the right words to describe how she felt then. I’m sure that was a kind different perception comparing with nowadays one. You know, when you don’t hurry, you don’t think about your own family and kids…you feel like everything’s still ahead..! I believe she didn’t take it seriously then, neither did I. We both led the lives of happy youngies.. Unless now, when her dh and she got truly ready for kids. This is their obsession now, a heavy burden they’re trying to find solutions to fight with..At times my sweety looks like she abandons hope..But her husband is the rock of support, and helps her through..From what I know now, they’re doing researches a repro center abroad. They are considering to pass surrogacy there (The thing the clinic includes mitochondria donation treatment into the surrogacy package makes their interest even more heated..) Well, I’m just hoping for them and others in the same boat. Stay strong, brave people!

  5. M_of_IVF baby says:

    Yep. Nel Belle is just amazing! I’ve got to know some details about MRKH too. Though I’m not new to the condition. I mean I have the one from my surrounding who suffers the disease..Poor girl she’s been hiding for so long behind the screen!! Now things changed due to sweet people like you who tell their stories for others, so that they don’t feel alone..She’s currently considering applying for surrogacy..
    Sending all my positive thoughts your way!

  6. I think for some people, the desire to have children IS all consuming, while for others it is less pressing but still important. I am not one of those people, but I think the desire is very real. To some degree, genetically and culturally programmed. It is also intimately connected to a sense of self and of sexuality..Feeling whole, not being an outsider or “different,” of not being “defective.” I sometimes marvel at the painful lengths to which people with MRKH will go to have their “own” biological children..
    Thank you for being this open with us.

  7. Thank you so much for sharing. I also have MRKH. I also didn’t get a menstrual cycle at the age of 16 years. I went in to get checked out for birth control and told them. They did testing and told me I couldn’t carry my own child due to not having a uterus. I’m now 38 and it still hurts but I know God chose a different path for me. I’m married to an amazing man and I have a 19 year old step son who I helped raised from age 7. I watch all my friends and family having babies and it hurts, I’m happy for them but still cuts deep. Thank you for sharing your story. I’m so happy I came across this. Its nice to know, I’m not alone out here. ❤❤

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